Congenital Neuromuscular Disorders
Since 1922, we have been providing innovative care to children with muscular and neuromuscular disorders at Shriners Children's.
As a world-renowned leader in providing specialized pediatric medical care, we utilize the latest clinical and scientific research in our comprehensive approach to treatment.
Children with neuromuscular conditions have unique needs that often evolve as the child grows and gets older, or as the condition progresses. These conditions may cause problems with strength and mobility, and lead to the development of secondary medical concerns. We customize our care plans to treat the current needs of the child and to minimize additional conditions from developing. Every family we interact with is guided through the treatment process in a warm, collaborative environment that always puts the child first. Our focus is to help every child meet their potential and live their best life – physically, emotionally and psychologically – during every step of their journey with Shriners Children’s.
Muscular and neuromuscular conditions range in complexity and severity, and they can appear in a number of ways. Every patient deserves an individualized treatment plan that meets their unique needs, and this is why Shriners Children’s embraces a multidisciplinary approach.
Some of the pediatric neuromuscular conditions we routinely treat are:
- Arthrogryposis
- Cerebral palsy
- Charcot-Marie-Tooth disease
- Congenital pseudarthrosis of the tibia
- Distal hereditary motor neuropathies (dHMN)
- Ehlers-Danlos syndromes
- Friedreich ataxia
- Juvenile rheumatoid arthritis (juvenile inflammatory arthritis)
- Marfan syndrome
- Muscular dystrophy
- Neuromuscular scoliosis
- Spina bifida
- Spinal muscular atrophy
Specific treatments and services may vary by location. Please contact a specific location for more information.
Support Services
Shriners Children’s support services aim to help children and their families heal, recover, and live a fulfilled and independent life with their condition. The specific muscular and neuromuscular support services your child's health care team recommends will be guided by the type and severity of the condition. Some patients, for example, may benefit from custom orthotics or serial stretch casting, while others thrive after in physical therapy or surgery. Again, every child's needs are different.
Shriners Children’s offers diverse muscular and neuromuscular support services, including:
- Pediatric Orthotic and Prosthetic Services (POPS)
- Motion analysis
- Speech-language pathology
- Respiratory care
- Child life therapy
- Neuromuscular therapy
- Care management
- Occupational therapy
- Physical therapy
- Interpreter services
- Pet therapy
- Music therapy
- School re-entry service
- Specialty camps
Our Team
Our team is comprised of some of the world's leaders in the field, including pediatric orthopedic surgeons, hand surgeons, physiatrists, neurosurgeons, neurologists, physical and occupational therapists, and a wide array of other specialists. Together, we're improving the lives of children and helping them fulfill their dreams.
When it comes to treating rare or complicated muscular and neuromuscular conditions, our team of specialists is armed with extensive experience and the most up-to-date research and technology. We provide compassionate, family-centered care that addresses all aspects of well-being.
In a world where you feel like resources are limited, Shriners Children's has the answers. The individualized treatment they provide is not just a one-size-fits-all approach – it is what has allowed my daughter to come as far as she has.