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Condition
Werdnig-Hoffmann Disease
Werdnig-Hoffmann disease is a severe form of spinal muscular atrophy. This rare genetic condition causes muscles to weaken, leading to minimal ability to move.
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Specialty
Spine & Spinal Cord
https://shriners-production-cd.azurewebsites.net/en/Pediatric-Care/Spine-and-Spinal-CordAt Shriners Children's, every family can expect our pediatric spine and spinal cord surgeons to provide compassion, respect and a treatment plan that utilizes the most current clinical and scientific research.
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Outpatient Clinic
Shriners Children's Doylestown Clinic
https://shriners-production-cd.azurewebsites.net/en/Locations/Philadelphia/Clinics/Doylestown-ClinicShriners Children's Philadelphia has a clinic in Doylestown, Pennsylvania, where patients can be seen for new patient appointments, follow-up appointments and fractures.
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Podcast
Muscular Dystrophy and Neuromuscular Conditions
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Podcasts/2021/05/Muscular-Dystrophy-and-Neuromuscular-ConditionsPodcast with Dr. Ken Silver, pediatric neurologist, about muscular dystrophy and neuromuscular conditions.
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Outpatient Clinic
Shriners Children's Medford Clinic
https://shriners-production-cd.azurewebsites.net/en/Locations/Portland/Clinics/Medford-ClinicShriners Children's Medford Clinic is an extension of Shriners Children's Portland, conveniently located for families in southern Oregon.
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Patient Story
Bowel Management Program Helps Patient Gain Independence
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2020/08/Bowel-management-program-helps-patient-gain-independenceWhen Jordyn was a brand new baby, Yoni knew right away that she wasn’t feeding properly. Jordyn was Yoni’s third baby, so she knew how to manage the sleepless days with a newborn and teaching a newborn to drink milk. But Jordyn was unable to keep the milk down.
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Patient Story
Orthotic and Prosthetic Services Help Teen Girl Pursue Her Passions
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2020/11/Orthotic-and-prosthetic-services-help-teen-girl-pursue-her-passions -
Patient Story
Mother and Son Treated for Osteogenesis Imperfecta at Shriners Hospitals for Children
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2020/08/Mother-and-son-treated-for-osteogenesis-imperfecta-at-Shriners-Hospitals-for-ChildrenMedical team's expertise in treating osteogenesis imperfecta (brittle bone disease) helps Hunter thrive.
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Patient Story
Hope for Families Navigating Rare Diseases
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2024/04/Hope-for-Families-Navigating-Rare-DiseasesThrough specialized care and unwavering support, Shriners Children’s Portland provides a beacon of hope for Avery and Madison.
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Video
Camp Bravo
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Videos/2022/02/Camp-BravoCamp Bravo is a week-long acting day-camp for patients with any diagnosis ages 5 and up.