Finding Hope
Abby's care team at Shriners Children's has given her hope for her future.
The moment she entered Shriners Children’s Northern California, Abby felt a sense of comfort that she had never experienced in a hospital environment.
“For 15 years, I had no idea what was wrong with me,” said Abby. “From a young age, I knew something was wrong in my legs and no one could figure it out until I came to Shriners Children’s.”
Jon R. Davids, M.D., assistant chief of orthopedics, was assigned her case and quickly put a plan in place to provide Abby a diagnosis and care plan. With an idea of what was wrong, Dr. Davids sent her for X-rays and an MRI. He confirmed a diagnosis of miserable malalignment syndrome, an abnormal rotation of the femur, the tibia or both the femur and tibia that typically causes knee pain, but also can cause hip, ankle and back pain.
“I had never received so much information,” said Abby. “I was thinking, 'Wow, my family finally has the answers we’ve been looking for.'”
Dr. Davids didn’t stop there. He wanted more information on how this condition was specifically affecting Abby. This meant performing a gait study on Abby in the Shriners Children’s Northern California motion analysis center. Using the same technology used to animate characters in live-action movies, the Shriners Children’s team places markers on patients and is able to capture data to make precise and incredibly accurate surgical decisions.
For 15 years, I had no idea what was wrong with me. From a young age, I knew something was wrong in my legs and no one could figure it out until I came to Shriners Children’s.
“I love Dr. Davids. We talk a lot and he’s a really nice guy. Oh, and the gait lab study was very fun and interesting, and the ladies that ran it were very, very nice,” said Abby.
Abby underwent highly-specialized orthopedic surgery in January of 2023, and is now doing individualized physical therapy two times a week with a multidisciplinary care team.
“Oh my gosh, I love physical therapy. Me and Erin are basically friends at this point. My relationship with her is the best part of my care,” said Abby. “I thought it was going to be really scary because they described it as ‘intense therapy,’ but my physical therapist makes me feel so comfortable and listens to exactly how I am feeling.”
Beyond the operating room, Abby and her family are continually surprised and thankful for all the support from hospital staff. Her mother feels that for the first time in Abby's life, care teams have the patience to listen to her every concern and are providing solutions. Abby and her twin sister, Annie, have made friends with other patients and even administrative professionals around the building.
“You see smiles everywhere,” said Abby. “It’s like ‘You are in our care now, so we are going to treat you like one of our own.’ It’s like being at home and all the people caring for you are your family members.”
Abby looks forward to a future of getting back to activities she loves with more ability. She is excited to get back to doing gymnastics, surfing and playing volleyball like she never has before!
“I have hope now,” said Abby. “And it’s because of all the people here at Shriners Children’s and my entire family, especially mamma and sissy.”