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Patient Story
Rare Disease Day 2023: Keira and Hannea's Journeys at Shriners Children's
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2023/02/Rare-Disease-DayRead the stories of Keira and Hannea, who both found their homes away from home at Shriners Children's Philadelphia while receiving care for their rare medical conditions.
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Video
Meet Jackson
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Videos/2023/12/Meet-JacksonJackson has scoliosis, but after two surgeries, he is able to run cross country.
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Treatment
Spinal Fusion Surgery
Spinal fusion surgery stabilizes and corrects the curvature of the spine; and for scoliosis and kyphosis, prevents further curvature of the spine. Stabilizing the spine can improve movement, reduce pain and restore lung function.
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Treatment
Vertical Expandable Prosthetic Titanium Rib (VEPTR or Titanium Rib)
A curved metal rod that is surgically implanted to help straighten the spine and separate ribs so the lungs can grow and expand as the child grows. This device can be used to treat severe chest wall deformities and scoliosis.
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Video
Alexis explains her organization EmBrace You
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Videos/2021/02/Alexis-explains-her-organization-EmBrace-YouWhen Alexis was diagnosed with Juvenile Idiopathic Scoliosis, she made it her goal to find a way to help others diagnosed with her same condition. EmBrace You is her organization that makes and provides Brace Bags for kids to keep their brace in during activities.
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Patient Story
Kerrigan Is a Competitor
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2023/06/Kerrigan-is-a-CompetitorA broken back helped Kerrigan fix an underlying condition, thanks to her care at Shriners Children's St. Louis.
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Patient Story
VBT Friends Forever
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2022/12/VBT-Friends-ForeverTwo patients become friends after getting the same surgery done on the same day at the hospital with the same surgeon.
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Patient Story
Meet Christian, Shriners Children’s Florida’s 2023 Standard Bearer Representative for the Shriners Children’s Open
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2023/09/Christian-Florida-Standard-BearerChristian is a cyclist, mentor and ballroom dancer.
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Patient Story
Honorary Captain Has Eyes Set on Future
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2022/06/Eyes-Set-on-FutureMalorie, a Shriners Children's St. Louis patient, heads to Pittsburg State University several months early for role as 'honorary captain' of the Kansas Shrine Bowl.
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Patient Story
Teen Is State Wheelchair Racing Champion Two Years in a Row
https://shriners-production-cd.azurewebsites.net/en/News-and-Media/Patient-Stories/2024/08/Teen-Is-State-Wheelchair-Racing-ChampionSpine and spinal cord injury care at Shriners Children's helped Andrea roll to victories in wheelchair track.