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Atención personalizada

Tenemos el compromiso de brindar atención individualizada, compasión y cuidado para que los niños puedan cumplir sus sueños y prosperar al ser adultos.

Por eso creamos planes de atención médica individualizada muy bien pensados que se centran en las necesidades únicas y el bienestar a largo plazo de cada niño. Una pieza clave de ese plan de atención médica es nuestro equipo de atención multidisciplinaria y especializada: los médicos, los cirujanos, los enfermeros y el personal que acompañarán a su hijo en su recorrido. Su equipo de atención adoptará un método terapéutico colaborativo y centrado en la familia, y usted participará en cada paso del proceso.

Nos tomamos el tiempo de forjar un vínculo con cada niño y su familia: indagamos sobre sus intereses y sus metas, los ayudamos a desarrollar la autoestima y los alentamos a no abandonar sus sueños. A veces, vamos un paso más allá de la atención médica para cumplir esos sueños. Alentamos a los niños a que persigan activamente sus intereses y les damos información sobre los programas que podrían gustarles, como campamentos especiales de verano e invierno, el Programa de embajadores para pacientes y oportunidades deportivas de adaptación, que modifican un programa que ya existe para adaptarlo a las necesidades individuales del niño. Con esto, ayudamos a los niños a tomar confianza para convertirse en participantes activos en sus escuelas y comunidades.

En Shriners Children's, buscamos continuamente formas de mejorar la calidad de vida de los niños. Muchos de nuestros pacientes acuden a nosotros después de que la familia recibe la noticia no se puede hacer nada más por el niño. Nosotros queremos demostrarles lo contrario. Todo nuestro equipo tiene el compromiso de buscar maneras de mejorar la vida de los niños y de brindarles los recursos y la determinación que necesitan para lograr buenos resultados.

Además de forjar vínculos significativos con los pacientes, nuestro método personalizado implica formar una alianza con su familia. Los guiaremos a través del proceso, les explicaremos las complejidades e implicaciones de la afección de su hijo, repasaremos todas las opciones y les daremos recursos útiles para que pueda tomar las mejores decisiones para la salud de su hijo. Después de eso, nos mantendremos en contacto durante el crecimiento de su hijo para abordar cualquier necesidad que pueda tener.

Buscamos continuamente formas de mejorar la calidad de vida de los niños. Desde investigaciones y tratamientos médicos revolucionarios hasta vínculos que fortalecen su confianza, tenemos el compromiso de ayudar a los niños a superar sus desafíos y avanzar con paso firme y la frente en alto.

Algunos dicen que Shriners Children's hace milagros. No es que la atención que se brinda, ya sea una variedad de terapias, una intervención quirúrgica o la creación de una prótesis u ortesis, sea un milagro. Es que nuestro personal no se rinde, cree que la mejora es posible, sabe qué tipo de tratamiento ofrecer y dedica el tiempo y el esfuerzo que cada paciente necesita.
Mary


Lea sobre cómo estamos ayudando a nuestros pacientes

Estamos comprometidos a prestar a cada paciente toda nuestra atención, a apoyar sus objetivos y sueños y a hacer todo lo que esté a nuestro alcance para garantizar que reciban la atención necesaria para tener una vida plena y productiva. He aquí algunas historias de pacientes que demuestran este compromiso.

Atención personalizada entre generaciones

Acompañe el recorrido de Kendyl, la atención especializada que se le brinda para tratar el pie equino varo  y el extraordinario vínculo con su padre, quien también recibió tratamiento en Shriners Children's por pie equino varo.

Una relación a largo plazo con un impacto duradero

Vea la extraordinaria historia de Hadley, quien sufre de huesos de cristal, pero nunca permitió que esto afectara su esperanza ni su vida gracias a la estrecha relación que tiene con su cirujano ortopédico.

Abraza sus superpoderes

Mire cómo Liam se transforma en sus superhéroes favoritos en su camino por vencer a la escoliosis.

Rewriting Destiny: The Stories of Paige and Grayson

Every year, Shriners Children's selects two International Patient Ambassadors to represent the healthcare system's patients. We are proud to introduce our 2024-2025 International Patient Ambassadors Paige and Grayson, and share their incredible stories.
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Paige, Shriners Children's International Patient Ambassador:

Being brave means to not give up. Being brave means to try and ignore the negativity that comes your way and turn it into a positive. Essentially being brave is to be you aside from what other people may think.

Josh, Paige's Father:

Paige was a very, very vibrant, active little girl, the little social butterfly, very large friend group, into sports. Just a very, very fun child to be around. Full of love, laughter.

Paige:

Childhood years were great until around my first grade year, and that's when I was prescribed seizure medications. And then I vividly remember around the first week of second grade, I had a seizure in class. It was a physical seizure, everyone could see, and I was embarrassed. And then from then on, I remember that was the point where my life started to not be fun.

Josh:

So when we finally arrived at Shriners, it was late at night and they had a team waiting when the ambulance pulled up and you could tell immediately that they were prepared and they knew what they were doing. The doctors were very open and honest with us and told us, "Hey, this is very serious." But you could tell as soon as we arrived, we were in the right place.

Jong O. Lee, M.D., Chief of Burns, Shriners Children's Texas:

So Paige was diagnosed with a disease process known as toxic epidermal necrolysis. You'll have an allergic reaction to a medication that you started taking and your skin starts to turn red and then develop blisters, and they slough off, which causes intense pain. And when your skin is sloughed off, then you can't protect your body from surrounding infections and bacteria.

Renee, Paige's Mother:

I will say Shriners did amazing things. They grafted her with the pig skin and her pigmentation damage is very, very limited.

Josh:

And really when she was a freshman is when she was really able to complete a full year of school, and I saw the happy, vibrant little girl come back out in her. And from there to where she's at today is just ... It's an amazing thing to see.

Paige:

I just want to be remembered as a young woman who has gone through a lot but doesn't use that to keep moving on in life.

Grayson, Shriners Children's International Patient Ambassador:

Hey, I'm Grayson. I'm 20 years old. I'm from Louisville, Kentucky, and I go to school at Harding University, which is in Searcy, Arkansas. I'm majoring in construction science with dreams of being a developer and I'm from Ukraine.

Ceci, Grayson's Mother:

We struggled to have kids to begin with and we thought we were going to have our kids through adoption, and so we ended up doing the adoption through Ukraine.

Clay, Grayson's Father:

It's really in the hands and the control of the Ministry of Adoption there and very little time to make decisions. We were introduced to Grayson and were drawn to him. We were told that he might have some medical issues, and when we visited him, we saw that.

Vishwas R. Talwalkar, M.D., Chief of Staff, Shriners Children's Lexington:

So Grayson has proximal focal femoral deficiency, which is a process that can be very different in different children, and in his case, he has a lot of shortening, so he has a limb that's very short compared to the other side. Sometimes it's hard for the family to hear that perhaps doing an operation where you take off part of the leg is the best option that allows them to be as functional and avoid long periods of hospitalization. It's not the right answer for everyone, but after a long discussion and putting our heads together and lots of soul-searching, it ended up being the correct one.

Grayson:

Shriners just had this atmosphere of just, okay, this is fun, they had games, I get to be here, I get to leave school early and go to my appointment. I mean, every person that's ever helped me with my prosthetic ... I mean, I could say, "Hey, this isn't feeling right" and immediately they would give me three or four options of like, "Oh, let's fix this. How does this feel?"

Ceci:

We are so grateful for Shriners. They have let Grayson have top-notch, incredible care, enabled him to lead a full life and not one time think that he's wearing a prosthetic leg.

Raymond "Donny" Lee, Ed.D., Dean, Professor of Education, Harding University:

One of the things that inspires me most about Grayson is he doesn't skirt his challenges. He doesn't run away from them, he meets them head on, and when he meets them head on, he does it, I think, with a spirit, not just a determination, but really a spirit that is infectious to those around him. He invites you to join him in what he's doing

Clay:

Easily, as a father, I'm most proud of his character.

Ceci:

I'm so proud of Grayson because he has not let his leg define him. People really love him and embrace him and see that true character of his.

Grayson:

When I think of the future, I get scared because of how awesome the present is. I just don't know how much better it can get.

Más información

Acerca de Shriners Children's

Shriners Children's es un sistema de atención médica innovador que cambia vidas todos los días a través de una atención pediátrica especializada innovadora, investigaciones de nivel mundial y excelente educación médica.

Servicios y recursos para pacientes

Obtenga más información sobre los servicios y recursos para pacientes en Shriners Children’s.

Nuestra misión

Shriners Children's está comprometido con la atención compasiva y de alta calidad que mejora la vida de los niños, en un ambiente de colaboración centrado en la familia.

Investigación en Shriners Children's

Conozca cómo Shriners Children's emplea investigaciones innovadoras para promover la atención médica pediátrica.

Estamos siempre disponibles para nuestros pacientes, independientemente de la capacidad de una familia para pagar.